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Palliative Medicine
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Article

Evaluation of quality-of-life measures for use in palliative care: A systematic review

G Albers1*, Michael A Echteld1, Henrica C W de Vet2, Bregje D Onwuteaka-Philipsen3, Mecheline H M van der Linden4, and Luc Deliens3

1 Department of Public and Occupational Health and EMGO Institute for Health and Care Research, VU University Medical Centre
2 EMGO Institute for Health and Care Research, VU University Medical Centre
3 Department of Public and Occupational Health and EMGO Institute for Health and Care Research,VU University Medical Centre
4 Department of Medical Psychology and Department of Medical Oncology, VU University Medical Centre

* To whom correspondence should be addressed. E-mail: g.albers{at}vumc.nl.


  Abstract

Purpose: In this literature review we evaluated the feasibility and clinimetric quality of quality-of-life (QoL) measurement instruments suitable for use in palliative care. Methods: We conducted a systematic literature review to identify instruments measuring (at least one domain of) QoL. We selected articles that present data on patients receiving palliative care and at least one measurement property. A checklist was used to describe the characteristics of the instruments, and a widely accepted rating list was used to evaluate the clinimetric aspects. Results: 29 instruments were identified and evaluated, most of which were targeted at palliative patients in general. None of the instruments demonstrated satisfactory results for all measurement properties. Fourteen instruments received positive ratings for construct validity. Thirteen instruments were tested for reliability, but only two were tested adequately and had positive results (ICC>0.70). Responsiveness was not tested adequately for any of the instruments. Very few of the studies provided information on the interpretation of the scores. Overall, the MQOL, followed by the QUAL-E and the QODD, received the best ratings for their measurement properties. Conclusions: Many measurement instruments were identified, but most had not yet been adequately evaluated. The evaluation of existing instruments with good content validity should have priority over the development of new instruments.

First published on October 20, 2009
Palliative Medicine 2009, doi:10.1177/0269216309346593
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