|
Sign In to gain access to subscriptions and/or personal tools.
|
Patient and carer preference for, and satisfaction with, specialist models of palliative care: a systematic literature review
E K Wilkinson
Wessex Institute for Health Research and Development, University of Southampton, London
C Salisbury
N Bosanquet
Department of Primary Health Care, Imperial College School of Medicine at St Mary's, London
P J Franks
The Centre for Research and Implementation of Clinical Practice, Thames Valley University, London
S Kite
The Margaret Centre, Whipps Cross Hospital, London
M Lorentzon
A Naysmith
This systematic literature review examined the impact of specialist models of palliative care on consumer satisfaction, opinion and preference over the past 20 years. From the literature search, 83 relevant papers were identified. Research findings from North America did not reveal any reliable or consistent trends, and this was due primarily to methodological flaws in the research. In the UK, consumers are more satisfied with all types of palliative care, whether provided by inpatient units or in the community, than with palliative care provided by general hospitals. Even though research findings consistently indicate that consumers appreciate the psychosocial climate in hospices, this research was based on small-scale local studies which were mainly focused on a single hospice. The dearth of high quality, comprehensive research was notable on the impact on consumer preference, opinion or satisfaction of hospice home care services, and other forms of palliative care in the community. It was concluded that further research is needed into consumer priorities for patients dying of noncancer diseases, and into the possible impact of patient characteristics on consumer satisfaction, opinion and preference for specialist models of palliative care.
Key Words: palliative care • terminal care • consumer satisfaction • caregivers • consumer participation • systematic literature review
Palliative Medicine, Vol. 13, No. 3,
197-216 (1999)
DOI: 10.1191/026921699673563105
 CiteULike  Complore  Connotea  Del.icio.us  Digg  Reddit  Technorati  Twitter What's this?
This article has been cited by other articles:
|
|
|
|
 
C. Zimmermann, R. Riechelmann, M. Krzyzanowska, G. Rodin, and I. Tannock
Effectiveness of Specialized Palliative Care: A Systematic Review
JAMA,
April 9, 2008;
299(14):
1698 - 1709.
[Abstract]
[Full Text]
[PDF]
|
|
|
|
|
|
|
K. A. Lorenz, J. Lynn, S. M. Dy, L. R. Shugarman, A. Wilkinson, R. A. Mularski, S. C. Morton, R. G. Hughes, L. K. Hilton, M. Maglione, et al.
Evidence for Improving Palliative Care at the End of Life: A Systematic Review
Ann Intern Med,
January 15, 2008;
148(2):
147 - 159.
[Abstract]
[Full Text]
[PDF]
|
|
|
|
|
|
|
S. Faithfull, K. Cook, and C. Lucas
Palliative care of patients with a primary malignant brain tumour: case review of service use and support provided
Palliative Medicine,
October 1, 2005;
19(7):
545 - 550.
[Abstract]
[PDF]
|
|
|
|
|
|
|
D. Goldschmidt, M. Groenvold, A. T. Johnsen, A. S Stromgren, A. Krasnik, and L. Schmidt
Cooperating with a palliative home-care team: expectations and evaluations of GPs and district nurses
Palliative Medicine,
April 1, 2005;
19(3):
241 - 250.
[Abstract]
[PDF]
|
|
|
|
|
|
|
C Ingleton, S Payne, M Nolan, and I Carey
Respite in palliative care: a review and discussion of the literature
Palliative Medicine,
October 1, 2003;
17(7):
567 - 575.
[Abstract]
[PDF]
|
|
|
|
|
|
|
P. J. Miceli and D. E. Mylod
Satisfaction of families using end-of-life care: Current successes and challenges in the hospice industry
American Journal of Hospice and Palliative Medicine,
September 1, 2003;
20(5):
360 - 370.
[Abstract]
[PDF]
|
|
|
|
|
|
|
T Morita, S Chihara, and T Kashiwagi
Family satisfaction with inpatient palliative care in Japan
Palliative Medicine,
April 1, 2002;
16(3):
185 - 193.
[Abstract]
[PDF]
|
|
|
|
|
|
|
T Morita, S Chihara, and T Kashiwagi
A scale to measure satisfaction of bereaved family receiving inpatient palliative care
Palliative Medicine,
March 1, 2002;
16(2):
141 - 150.
[Abstract]
[PDF]
|
|
|
|
|
|
|
C. F. von Gunten
Secondary and Tertiary Palliative Care in US Hospitals
JAMA,
February 20, 2002;
287(7):
875 - 881.
[Abstract]
[Full Text]
[PDF]
|
|
|
|
|
|
|
L. L. Steele, B. Mills, M. R. Long, and G. A. Hagopian
Patient and caregiver satisfaction with end-of-life care: Does high satisfaction mean high quality of care?
American Journal of Hospice and Palliative Medicine,
January 1, 2002;
19(1):
19 - 27.
[Abstract]
[PDF]
|
|
|
|
|
|
|
M. Serra-Prat, P. Gallo, and J. M Picaza
Home palliative care as a cost-saving alternative: evidence from Catalonia
Palliative Medicine,
June 1, 2001;
15(4):
271 - 278.
[Abstract]
[PDF]
|
|
|
|
|
|
|
A. Milberg and P. Strang
Met and unmet needs in hospital-based home care: qualitative evaluation through open-ended questions
Palliative Medicine,
September 1, 2000;
14(6):
533 - 534.
[PDF]
|
|
|
|
|
|
|
C. Salisbury and N. Bosanquet
Assessing palliative care is difficult
BMJ,
April 1, 2000;
320(7239):
942 - 942.
[Full Text]
|
|
|
|
|
|
|
P. J Franks, C. Salisbury, N. Bosanquet, E. K Wilkinson, S. Kite, A. Naysmith, and I. J Higginson
The level of need for palliative care: a systematic review of the literature
Palliative Medicine,
March 1, 2000;
14(2):
93 - 104.
[Abstract]
[PDF]
|
|
|
|
|
