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Palliative care in the community for cancer and end-stage cardiorespiratory disease: the views of patients, lay-carers and health care professionals

Centre for Health Services Research, School of Population and Health Sciences, University of Newcastle, Newcastle upon Tyne

David Field

Division of Epidemiology and Public Health, Department of Health Sciences, University of Leicester, Leicester

Linda Jones

School of Nursing, University of Nottingham, Nottingham

Tim Stokes

National Collaborating Centre for Primary Care, Division of General Practice and Primary Health Care, Department of Health Sciences, University of Leicester, Leicester

Primary care plays an important role in delivering care to people who are dying. However, providing palliative care to people dying with conditions other than cancer may be more problematic, because it may be more difficult to establish an exact prognosis or to identify their needs. This article draws on qualitative research, which explored the views of health professionals, patients and their carers about care provided at the end of life. Differences between the care of people with cancer and those with end-stage cardiorespiratory disease were found in four main areas: management and progression of disease, communication and information, health care in the community and awareness of dying. The research shows that even in PHCTs (primary health care teams) committed to the delivery of palliative care, people dying with end-stage cardiorespiratory disease are less likely than those with cancer to receive full, and easily understood, information, to be aware that they are dying or to receive district nursing care. There is an increasing call for palliative care to be extended to all, but further work is needed to develop appropriate packages of care for those dying with conditions other than cancer.

Key Words: cancer • cardiorespiratory • community • palliative care • primary care

Palliative Medicine, Vol. 19, No. 1, 76-83 (2005)
DOI: 10.1191/0269216305pm973oa


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