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Palliative Medicine, Vol. 21, No. 1, 29-34 (2007)
DOI: 10.1177/0269216306073198

Terminally-ill people living alone without a caregiver: an Australian national scoping study of palliative care needs

S Aoun

WA Centre for Cancer and Palliative Care, Edith Cowan University, Churchlands, s.aoun{at}ecu.edu.au

L J Kristjanson

WA Centre for Cancer and Palliative Care, Curtin University of Technology, Bentley

D Currow

Department of Palliative and Supportive Services, Flinders University, Adelaide

K Skett

Silver Chain Hospice Care, Perth

L Oldham

WA Centre for Cancer and Palliative Care, Curtin University of Technology, Bentley

P Yates

Centre for Health Research, Queensland University of Technology, Brisbane

Home-based palliative care services are facing increasing challenges in servicing the needs of clients who live alone and without a primary caregiver. The findings from the analysis of 721 services’ records from three Australian states, and feedback from health professionals in interviews and postal surveys, demonstrated that there were aspects of being on one’s own with a terminal illness and living at home that require a specialised approach and support. This study explored the issues of palliative care patients living alone, from a service provider perspective, and provided evidence-based information to assist with service planning. The study made recommendations to the Australian Department of Health and Ageing about services considered important in developing support structures for this growing population.

Key Words: caregiver • community services • living alone • palliative care • place of death


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