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Palliative Medicine
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Demographic factors and awareness of palliative care and related services

Jonathan Koffman

Department of Palliative Care, Policy and Rehabilitation, King’s College London School of Medicine, London, jonathan.koffman{at}kcl.ac.uk

Geraldine Burke

St Luke’s Hospice, Harrow

Angela Dias

St Luke’s Hospice, Harrow

Bharti Raval

St Luke’s Hospice, Harrow

Judi Byrne

St Luke’s Hospice, Harrow

Juan Gonzales

Biostatistics Unit, King’s College Hospital NHS Trust, London

Charles Daniels

St Luke’s Hospice, Harrow

Background: Palliative care is not accessed by all those who can benefit from it.

Survey aim: To explore awareness of palliative care and related services among UK oncology out-patients, and to analyse the relationship between demographic characteristics and knowledge.

Design: Cross-sectional interview-based survey. Analysis comprised univariate and multiple logistic regression.

Participants and settings: Oncology out-patients receiving curative treatments at two district general hospitals in north-west London between December 2004 and April 2005.

Results: A total of 252 (94%) eligible clinic patients were interviewed. Only 47 (18.7%) patients recognised the term ‘palliative care’, but 135 (67.8%) understood the role of the hospice, and 164 (66.7%) understood the role of Macmillan nurses. Age-adjusted multiple logistic regression showed that recognizing the term ‘palliative care’ was more likely among the most socially and materially affluent patients than those who were the poorest (OR: 8.4, CI: 2.17-31.01, p =0.002). Understanding the role of Macmillan nurses was also more likely among the most socially and materially affluent patients compared with the poorest patients (OR: 7.0, CI: 2.41-18.52, p <0.0001), and was independently less likely among patients from black and minority ethnic groups than those who were classified as being white British (OR=0.5, CI:0.25-0.96, p =0.04).

Conclusions: Awareness of palliative care and related services was low among black and minority ethnic groups, and the least affluent.

Key Words: deprivation • ethnicity • gender • knowledge • palliative care

Palliative Medicine, Vol. 21, No. 2, 145-153 (2007)
DOI: 10.1177/0269216306074639


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