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Palliative Medicine
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What are patients' priorities for palliative care research? Focus group study

P. Perkins

Sue Ryder Care St John's Hospice, Moggerhanger and Hinchingbrooke Hospital, Huntingdon, UK, paul.perkins{at}suerydercare.org

S. Barclay

Department of Public Health and Primary Care, University of Cambridge, Cambridge, UK

S. Booth

Department of Palliative Medicine, Addenbrooke's Hospital, Cambridge, UK

To elucidate the research priorities of palliative care patients we conducted focus groups with day therapy and hospice in-patients with cancer with an estimated prognosis of 6 months or less. Patients were positive about taking part in this research project identifying five main priorities for future research — talking with patients; help for patients and families; oncology; symptoms; medication/treatments. Patients gave great emphasis to communication issues and little to symptom control. A patient questionnaire was created with these themes which is currently being used in five hospices across East Anglia. This paper describes the qualitative component of the study. Palliative Medicine 2007; 21: 219—225

Key Words: focus group • palliative • qualitative • research • user involvement

Palliative Medicine, Vol. 21, No. 3, 219-225 (2007)
DOI: 10.1177/0269216307077353
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