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Palliative Medicine
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*Cancer
*Cancer--Living with Cancer
*Choosing a Doctor or Health Care Service
*Family Issues
*Palliative Care
*Talking With Your Doctor
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What's this?

What are patients' priorities for palliative care research? — a questionnaire study

Paul Perkins

Sue Ryder Care Leckhampton Court Hospice, Cheltenham, Gloucestershire, paul.perkins{at}suerydercare.org

Sara Booth

Department of Palliative Medicine, Addenbrooke's Hospital, Cambridge

Sarah L. Vowler

Centre for Applied Medical Statistics, Department of Public Health and Primary Care, University of Cambridge, Cambridge

Stephen Barclay

Department of Public Health and Primary Care, University of Cambridge, Cambridge

This paper describes the questionnaire component of a two-stage study to examine the research priorities of palliative care patients. In the first stage focus groups were conducted to determine a list of priorities for future research: a questionnaire created from these themes was then used in five hospices across East Anglia. Patients thought that the focus group priorities were important and scored research into emergency care, pain control and helping doctors to understand what patients were saying as most important. Differences in priority were associated with gender, age and in-patient versus day therapy patients. Palliative Medicine 2008; 22: 7—12

Key Words: palliative • research • user involvement

Palliative Medicine, Vol. 22, No. 1, 7-12 (2008)
DOI: 10.1177/0269216307085180
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