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Palliative Medicine
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What's this?

research-article

Researching breathlessness in palliative care: consensus statement of the National Cancer Research Institute Palliative Care Breathlessness Subgroup

S Dorman

Poole Hospital NHS Foundation Trust, Longfleet Road, Poole saskie.dorman{at}poole.nhs.uk

C Jolley

King’s College London, Division of Asthma, Allergy and Lung Biology, Denmark Hill, London

A Abernethy

Division of Medical Oncology, Department of Medicine, Duke University Medical Center, Durham, North Carolina

D Currow

Department of Palliative and Supportive Services, Flinders University, Adelaide

M Johnson

University of Hull and Honorary Consultant to St Catherine’s Hospice, Scarborough

M Farquhar

General Practice and Primary Care Research Unit, Department of Public Health and Primary Care, University of Cambridge, Cambridge

G Griffiths

Wales Cancer Trials Unit, Cardiff

T Peel

North Tyneside General Hospital, Rake Lane, North Shields, Tyne & Wear

S Moosavi

Airways Disease, Faculty of Medicine, National Heart and Lung Institute, Imperial College London

A Byrne

Marie Curie Centre, Bridgeman Road, Penarth, Vale of Glamorgan and Wales Cancer Trials Unit, Cardiff

A Wilcock

Hayward House Macmillan Specialist Palliative Cancer Care Unit, Nottingham University Hospitals NHS Trust, City Hospital Campus, Hucknall Road, Nottingham

L Alloway

North Hampshire Palliative Care Service, Basingstoke

C Bausewein

King’s College London, London

I Higginson

King’s College London, London

S Booth

Cambridge University Hospitals NHS Foundation Trust, Cambridge

Breathlessness is common in advanced disease and can have a devastating impact on patients and carers. Research on the management of breathlessness is challenging. There are relatively few studies, and many studies are limited by inadequate power or design. This paper represents a consensus statement of the National Cancer Research Institute Palliative Care Breathlessness Subgroup. The aims of this paper are to facilitate the design of adequately powered multi-centre interventional studies in breathlessness, to suggest a standardised, rational approach to breathlessness research and to aid future ‘between study’ comparisons. Discussion of the physiology of breathlessness is included.

Key Words: breathlessness • dyspnoea • measurement • methodology • palliative care • research design

This version was published on April 1, 2009

Palliative Medicine, Vol. 23, No. 3, 213-227 (2009)
DOI: 10.1177/0269216309102520
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