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Palliative Medicine
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research-article

Key stakeholders' experiences and views of the NHS End of Life Care Programme: findings from a national evaluation

S Kennedy

Sue Ryder Care Centre for Palliative and End of Life Studies, School of Nursing, University of Nottingham, Nottingham, sheila.kennedy{at}nottingham.ac.uk

J Seymour

Sue Ryder Care Centre for Palliative and End of Life Studies, School of Nursing, University of Nottingham, Nottingham

K Almack

Sue Ryder Care Centre for Palliative and End of Life Studies, School of Nursing, University of Nottingham, Nottingham

K Cox

Sue Ryder Care Centre for Palliative and End of Life Studies, School of Nursing, University of Nottingham, Nottingham

This article reports on the qualitative interview component of a national evaluation of the NHS End of Life Care Programme. It describes and discusses the views and experiences of 37 stakeholders of the Programme in relation to its development and implementation, impact and sustainability. The sample comprises individuals holding different roles in, and contrasting views and experiences of the Programme, and from various locations in England. Overall, the aims, approach and impact of the Programme were described positively, although concerns about achieving sustainability were widespread. The extent of support for the Programme's primary aim to extend and improve end of life care, and the contribution of the hardworking and skilled individuals involved with its implementation, were highlighted as key influences on its successes. The authors conclude that many of the views and experiences highlighted in the stakeholder enquiry are reflected in the development and detail of the recently announced End of Life Care Strategy.

Key Words: end of life care • evaluation • inequalities • interviews • palliative care • policy • qualitative

Palliative Medicine, Vol. 23, No. 4, 283-294 (2009)
DOI: 10.1177/0269216309104861
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