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Information disclosure to terminally ill patients and their relatives: self-reported practice of Belgian clinical specialists and general practitionersDepartment of Medical Sociology and Health Sciences, Vrije Universiteit Brussel, End-of-Life Care Research Group, Brussels
Department of Medical Sociology and Health Sciences, Vrije Universiteit Brussel, End-of-Life Care Research Group, Brussels, rdeschep{at}vub.ac.be
Department of Medical Sociology and Health Sciences, Vrije Universiteit Brussel, End-of-Life Care Research Group, Brussels
Department of Philosophy and Moral Sciences, Ghent University, Bioethics Institute, Ghent
Department of Medical Sociology and Health Sciences, Vrije Universiteit Brussel, End-of-Life Care Research Group, Brussels; Department of Public and Occupational Health, EMGO Institute for Health and Care Research, VU University Medical Centre, Amsterdam Objective of this study is to examine physicians practices regarding information disclosure to terminally ill patients and to their relatives, without informing the patient. A questionnaire had been sent to a random sample of 3014 Belgian physicians from different specialties frequently involved in end-of-life care. Responses were analysed using weighted percentages, Chi-square, Mann–Whitney U-tests and a multivariate ordinal logistic regression. Response rate was 58%. Both clinical specialists and general practitioners (GPs) discuss most topics related to terminal illness with their patients except end-of-life hastening options, spirituality, life expectancy and options to withhold/withdraw life-sustaining treatment. The topics which most physicians always discuss with relatives without informing the patient are the aim of treatment, palliative care and incurability. There is a significant difference between clinical specialists and GPs. Clinical specialists and GPs discuss most end-of-life topics with the patient but omit important issues such as end-of-life hastening options and life-expectancy.
Key Words: communication end-of-life care information disclosure patient-physician relationship
This version was published on June
1, 2009 Palliative Medicine, Vol. 23, No. 4,
345-353 (2009) |
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