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Breaking bad news in amyotrophic lateral sclerosis

Hôtel Dieu de Paris, Centre de Diagnostic, Paris

There are many difficulties of communication with patients with amyotrophic lateral sclerosis (motor neurone disease). In France, most physicians have a policy of keeping the fact of this diagnosis from both patients and relatives. This paper describes an alternative approach based on open communication, and applies that principle to handling issues of communication associated with various aspects of four different topics: the diagnosis itself, the development of handicap, swallowing difficulties, and respiratory difficulties.

Key Words: amyotrophic lateral sclerosis • deglutition disorders • physician- patient relations • truth disclosure • ventilators • mechanical

Palliative Medicine, Vol. 7, No. 4 suppl, 37-40 (1993)
DOI: 10.1177/026921639300700407


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